A one year update
Very frequently in conversation friends make a point to ask, “So how’s your son doing?” I’m grateful for how people remember him. Many people tell me how they have prayed for him too. It also prompts me to give an update here on the blog since so many of you followed his story last May when we discovered and treated his retinoblastoma.
Today, Tuesday, March 27th, 2012, is Zach’s first birthday. It’s amazing to think that he’s already one year old. Time sure flies! Zach is a happy, joyful boy (believe me, he’s ALL BOY–in a house with six sisters, he’s catching on). He’s almost always smiling when he interacts with us. He enjoys exploring the world around him–like on Saturday when we took a two hour letter boxing walk turned hike. Zach is a wonderful part of our family and we cannot imagine life without him.
As you can see from this photo, his prosthetic eye is a beautiful match to his real eye–this photo shows them both off very well. Thanks to Emily Alberta of Angel Snap Photography. Thanks also to Greg Dootz, Zach’s ocularist–see Update #5 and Update #12.
What about the cancer?
We thank God that Zach has a 100% clear report up to the present. When the surgery first happened to remove his eye, the pathology report confirmed that the cancer (which filled 80% of his eye) was fully contained. It has not grown beyond the perimeter of the eye or down the optic nerve.
Zach has an exam under anesthesia (EUA) periodically. Sarah and Zach have now gone back to U of M Hospital for five exams where they put Zach to sleep and examine his good eye up close to scout-out any potential cancer. So far so good. There’s no trace of cancer in Zach’s good eye. Thank God for his powerful protection and mercy!
The next steps for Zach are as follows.
- He will continue to have the EUA’s about every 4 months (this first year it was every 2 months, and now they are spacing out more and more)
- He will begin wearing glasses soon–he has already been fitted for eye glasses to help protect his one remaining eye from any scratches or injuries.
- He will grow up like normal kids playing in similar ways and learning to see with his single eye.
- We’ll keep having a medical exam on his eye from now through the end of childhood in ever decreasing frequency (i.e. once per year once he’s beyond 5 or so).
- At some point he’ll come to understand how he’s different and we’ll help him to understand the implications for him.
By the way if you’d like to read or see all the posting about Zach from this blog in order, click on the tab on the bar on the upper left labelled ZACH.
Thank you to all of you who have left comments along the way. I don’t always have the time to reply to each and every one, but I do read every word when I approved the comments.
Thanks for praying for Zach, asking about him, helping our family, or whatever you have done. Today is a great day to celebrate–Happy Birthday First Birthday!